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    Retinitis pigmentosa (RP): fighting blindness

    RP, formerly the British Retinitis Pigmentosa Society, supports people affected by inherited progressive sight loss.  The charity provides: a retina UK helpline a telephone befriending service advice about diagnosis and beyond…
    Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    SCOPE

    Scope provides practical information and emotional support for people with disabilities. The services include: an online community online advice and support a telephone helpline support services information on benefits
    Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    SENDirect

    SENDirect helps you find local support, services and activities for your child. You can: talk to service providers and negotiate adapted activities for your child online buy support and equipment…
    Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    Special Needs UK

    This organisation provides parents and educational professionals with in depth information on the services and support groups available for children and young adults with special educational needs. Use their website…
    Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years
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    Swan UK (Syndromes Without A Name)

    SWAN UK is a dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.…
    Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    Talkbus

    Talkbus is a mobile information centre and support service which travels around Croydon visiting high streets, neighbourhoods, schools, colleges, community groups, youth centres and community events. It offers young people, aged 14…
    Applicable age ranges: 17 to 24 years, 11 to 16 years
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    Talking Point

    Talking Point gives parents, carers and practitioners the information they need to help children develop their speech, language and communication skills. If you are concerned about a child's speech, language and…
    Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    Together For Short Lives

    Together For Short Lives provides supportive plans for children and young people who are expected to live short lives. The charity directly supports children and families through their helpline, information and resources…
    Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
    New Bond HouseBond StreetBristolBS2 9AG
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    Young Epilepsy

    Young Epilepsy is a national charity that supports families, children and young people aged 25 and under with epilepsy and associated conditions.
    Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
    Young EpilepsySt. Piers LaneLingfieldSurreyRH7 6PW
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    Young Minds

    Young Minds is a mental health charity that ensures young people get the best possible mental health support to overcome life’s difficulties. The charity also has a helpline for parents.
    Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years

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