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Williams Syndrome Foundation

The Williams Syndrome Foundation provides help and support for families with children affected by the Williams Syndrome. The charity also promotes research and funding. Members of the foundation can benefit…
Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Starlight Children's Foundation

This charity is dedicated to brightening the lives of seriously ill children and their families. It's for children between the ages of 4 to 18 who may suffer from: leukaemia…
Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years
Third Floor227 Shepherds Bush RoadHammersmithLondonW6 7AU
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Swan UK (Syndromes Without A Name)

SWAN UK is a dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.…
Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Talkbus

Talkbus is a mobile information centre and support service which travels around Croydon visiting high streets, neighbourhoods, schools, colleges, community groups, youth centres and community events. It offers young people, aged 14…
Applicable age ranges: 17 to 24 years, 11 to 16 years
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Talking Point

Talking Point gives parents, carers and practitioners the information they need to help children develop their speech, language and communication skills. If you are concerned about a child's speech, language and…
Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Together For Short Lives

Together For Short Lives provides supportive plans for children and young people who are expected to live short lives. The charity directly supports children and families through their helpline, information and resources…
Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
New Bond HouseBond StreetBristolBS2 9AG
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Unique: rare disorders

Unique supports and helps prevent the isolation of anyone affected by rare chromosome disorder or an autosomal dominant single gene disorder. The organisation also raises public awareness.  They provide information…
Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
G1 The StablesStation Road WestOxtedSurreyRH8 9EE
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Sibs for brothers and sisters of disabled children and adults

Sibs supports people who grow up with or have grown up with a disabled brother or sister. The charity represents the needs of over 500 million young siblings and over…
Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Young Sibs

YoungSibs supports children and young people who have a diabled brother or sister. Their sibling may also have special educational needs or a serious long-term condition. The service is for…
Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years
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Young Minds

Young Minds is a mental health charity that ensures young people get the best possible mental health support to overcome life’s difficulties. The charity also has a helpline for parents.
Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years

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