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Swan UK (Syndromes Without A Name)

SWAN UK is a dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.…
Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Talking Point

Talking Point gives parents, carers and practitioners the information they need to help children develop their speech, language and communication skills. If you are concerned about a child's speech, language and…
Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Together For Short Lives

Together For Short Lives provides supportive plans for children and young people who are expected to live short lives. The charity directly supports children and families through their helpline, information and resources…
Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
New Bond HouseBond StreetBristolBS2 9AG
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Unique: rare disorders

Unique supports and helps prevent the isolation of anyone affected by rare chromosome disorder or an autosomal dominant single gene disorder. The organisation also raises public awareness.  They provide information…
Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
G1 The StablesStation Road WestOxtedSurreyRH8 9EE
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Shirley Children's Centre: Messy Play Drop In (Under 1's, term time only)

Monday's 1:00pm - 2:30pm (Term time only)
If your child loves getting their hands dirty by exploring the world around them, then Messy Play Drop In is the place for them. Messy Play helps children develop in…
Applicable age ranges: Parents and carers, 5 to 10 years, 0 to 4 years
34Lilac GardensShirley
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Sibs for brothers and sisters of disabled children and adults

Sibs supports people who grow up with or have grown up with a disabled brother or sister. The charity represents the needs of over 500 million young siblings and over…
Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Young Minds

Young Minds is a mental health charity that ensures young people get the best possible mental health support to overcome life’s difficulties. The charity also has a helpline for parents.
Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Winterbourne Nursery

The Enhanced Learning Provision (ELP) at Winterbourne Nursery provides a secure setting for children with moderate delay and a combination of speech, language and social interaction difficulties. Some children may…
Applicable age ranges: 0 to 4 years
Winterbourne Nursery & Infant SchoolWinterbourne RoadThornton HeathCR7 7QT
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When You Wish Upon A Star

When You Wish Upon A Star, is a charity that fulfils the wishes of children, aged 2 to 16, with life threatening and terminal illnesses.
Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
ValleyRoadBasfordNottinghamNG5 1JE
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Usher Syndrome Coalition

The coalition provides information and support to individuals and families affected by the Usher Syndrome. The coalition also raises awareness and researches the most common causes of combined deafness and…
Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years

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