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    Soundz Off

    Soundz Off is an online directory for anyone with hearing loss. The directory includes a list of organisations, support services, forums, social media links and general information for people in…
    Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    Special Needs Jungle

    The Special Needs Jungle is a parent-led online resource. It provides information and advice about children and young people, aged 0 to 25, who have special educational needs, disabilities, health…
    Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    Swan UK (Syndromes Without A Name)

    SWAN UK is a dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.…
    Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    Talking Point

    Talking Point gives parents, carers and practitioners the information they need to help children develop their speech, language and communication skills. If you are concerned about a child's speech, language and…
    Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    Together For Short Lives

    Together For Short Lives provides supportive plans for children and young people who are expected to live short lives. The charity directly supports children and families through their helpline, information and resources…
    Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
    New Bond HouseBond StreetBristolBS2 9AG
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    Unique: rare disorders

    Unique supports and helps prevent the isolation of anyone affected by rare chromosome disorder or an autosomal dominant single gene disorder. The organisation also raises public awareness.  They provide information…
    Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
    G1 The StablesStation Road WestOxtedSurreyRH8 9EE
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    Usher Syndrome Coalition

    The coalition provides information and support to individuals and families affected by the Usher Syndrome. The coalition also raises awareness and researches the most common causes of combined deafness and…
    Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    When You Wish Upon A Star

    When You Wish Upon A Star, is a charity that fulfils the wishes of children, aged 2 to 16, with life threatening and terminal illnesses.
    Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
    ValleyRoadBasfordNottinghamNG5 1JE
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    Williams Syndrome Foundation

    The Williams Syndrome Foundation provides help and support for families with children affected by the Williams Syndrome. The charity also promotes research and funding. Members of the foundation can benefit…
    Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    Young Epilepsy

    Young Epilepsy is a national charity that supports families, children and young people aged 25 and under with epilepsy and associated conditions.
    Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
    Young EpilepsySt. Piers LaneLingfieldSurreyRH7 6PW

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