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    Together For Short Lives

    Together For Short Lives provides supportive plans for children and young people who are expected to live short lives. The charity directly supports children and families through their helpline, information and resources…
    Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
    New Bond HouseBond StreetBristolBS2 9AG
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    Unique: rare disorders

    Unique supports and helps prevent the isolation of anyone affected by rare chromosome disorder or an autosomal dominant single gene disorder. The organisation also raises public awareness.  They provide information…
    Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
    G1 The StablesStation Road WestOxtedSurreyRH8 9EE
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    Sibs for brothers and sisters of disabled children and adults

    Sibs supports people who grow up with or have grown up with a disabled brother or sister. The charity represents the needs of over 500 million young siblings and over…
    Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    Young Minds

    Young Minds is a mental health charity that ensures young people get the best possible mental health support to overcome life’s difficulties. The charity also has a helpline for parents.
    Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    When You Wish Upon A Star

    When You Wish Upon A Star, is a charity that fulfils the wishes of children, aged 2 to 16, with life threatening and terminal illnesses.
    Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
    ValleyRoadBasfordNottinghamNG5 1JE
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    Usher Syndrome Coalition

    The coalition provides information and support to individuals and families affected by the Usher Syndrome. The coalition also raises awareness and researches the most common causes of combined deafness and…
    Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    SOS SEN

    SOS SEN provides a free, confidential telephone helpline for parents and others seeking information and advice on special educational needs. The charity also offers: a monthly drop in advice centres…
    Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    Soundz Off

    Soundz Off is an online directory for anyone with hearing loss. The directory includes a list of organisations, support services, forums, social media links and general information for people in…
    Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    Special Needs Jungle

    The Special Needs Jungle is a parent-led online resource. It provides information and advice about children and young people, aged 0 to 25, who have special educational needs, disabilities, health…
    Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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    Retinitis pigmentosa (RP): fighting blindness

    RP, formerly the British Retinitis Pigmentosa Society, supports people affected by inherited progressive sight loss.  The charity provides: a retina UK helpline a telephone befriending service advice about diagnosis and beyond…
    Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years

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