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Unique: rare disorders

Unique supports and helps prevent the isolation of anyone affected by rare chromosome disorder or an autosomal dominant single gene disorder. The organisation also raises public awareness.  They provide information…
Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
G1 The StablesStation Road WestOxtedSurreyRH8 9EE
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Usher Syndrome Coalition

The coalition provides information and support to individuals and families affected by the Usher Syndrome. The coalition also raises awareness and researches the most common causes of combined deafness and…
Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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When You Wish Upon A Star

When You Wish Upon A Star, is a charity that fulfils the wishes of children, aged 2 to 16, with life threatening and terminal illnesses.
Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
ValleyRoadBasfordNottinghamNG5 1JE
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Williams Syndrome Foundation

The Williams Syndrome Foundation provides help and support for families with children affected by the Williams Syndrome. The charity also promotes research and funding. Members of the foundation can benefit…
Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Young Epilepsy

Young Epilepsy is a national charity that supports families, children and young people aged 25 and under with epilepsy and associated conditions.
Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
Young EpilepsySt. Piers LaneLingfieldSurreyRH7 6PW
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Young Minds

Young Minds is a mental health charity that ensures young people get the best possible mental health support to overcome life’s difficulties. The charity also has a helpline for parents.
Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years

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