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Swan UK (Syndromes Without A Name)

SWAN UK is a dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.…
Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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The Teaching and Learning Collaboration (TLC)

The Teaching and Learning Collaboration (TLC) is a multi-disciplinary team of dedicated professionals offering a range of individualised, effective and high quality services to individual’s families, schools and organisations. We…
Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Together For Short Lives

Together For Short Lives provides supportive plans for children and young people who are expected to live short lives. The charity directly supports children and families through their helpline, information and resources…
Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
New Bond HouseBond StreetBristolBS2 9AG
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Usher Syndrome Coalition

The coalition provides information and support to individuals and families affected by the Usher Syndrome. The coalition also raises awareness and researches the most common causes of combined deafness and…
Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Williams Syndrome Foundation

The Williams Syndrome Foundation provides help and support for families with children affected by the Williams Syndrome. The charity also promotes research and funding. Members of the foundation can benefit…
Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Young Carers

The Young Carers Service is for children and young people up to the age of 25, who are carers to a parent or sibling with a: physical disability mental health…
Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years
Sunley House,4 Bedford Park,CroydonSurreyCR0 2AP
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Young Epilepsy

Young Epilepsy is a national charity that supports families, children and young people aged 25 and under with epilepsy and associated conditions.
Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
Young EpilepsySt. Piers LaneLingfieldSurreyRH7 6PW
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Young Minds

Young Minds is a mental health charity that ensures young people get the best possible mental health support to overcome life’s difficulties. The charity also has a helpline for parents.
Applicable age ranges: Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Young Sibs

YoungSibs supports children and young people who have a diabled brother or sister. Their sibling may also have special educational needs or a serious long-term condition. The service is for…
Applicable age ranges: Parents and carers, 11 to 16 years, 5 to 10 years
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Your Care

YourCare sells trust equipment to adults, children and young people to help improve your quality of life and independence. No matter your budget, YouCare can help you find the best…
Applicable age ranges: 25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
28Boulogne RoadCroydonCR0 2QT

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