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SWAN UK is a dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.…
Swan UK (Syndromes Without A Name)
Applicable age ranges:
Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Talking Point gives parents, carers and practitioners the information they need to help children develop their speech, language and communication skills. If you are concerned about a child's speech, language and…
Talking Point
Applicable age ranges:
Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Together For Short Lives provides supportive plans for children and young people who are expected to live short lives. The charity directly supports children and families through their helpline, information and resources…
Together For Short Lives
Applicable age ranges:
Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
New Bond HouseBond StreetBristolBS2 9AG
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Unique supports and helps prevent the isolation of anyone affected by rare chromosome disorder or an autosomal dominant single gene disorder. The organisation also raises public awareness. They provide information…
Unique: rare disorders
Applicable age ranges:
25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
G1 The StablesStation Road WestOxtedSurreyRH8 9EE
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The coalition provides information and support to individuals and families affected by the Usher Syndrome. The coalition also raises awareness and researches the most common causes of combined deafness and…
Usher Syndrome Coalition
Applicable age ranges:
25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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When You Wish Upon A Star, is a charity that fulfils the wishes of children, aged 2 to 16, with life threatening and terminal illnesses.
When You Wish Upon A Star
Applicable age ranges:
Parents and carers, 11 to 16 years, 5 to 10 years, 0 to 4 years
ValleyRoadBasfordNottinghamNG5 1JE
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The Williams Syndrome Foundation provides help and support for families with children affected by the Williams Syndrome. The charity also promotes research and funding. Members of the foundation can benefit…
Williams Syndrome Foundation
Applicable age ranges:
25 plus years, Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
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Young Epilepsy is a national charity that supports families, children and young people aged 25 and under with epilepsy and associated conditions.
Young Epilepsy
Applicable age ranges:
Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years
Young EpilepsySt. Piers LaneLingfieldSurreyRH7 6PW
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Young Minds is a mental health charity that ensures young people get the best possible mental health support to overcome life’s difficulties. The charity also has a helpline for parents.
Young Minds
Applicable age ranges:
Parents and carers, 17 to 24 years, 11 to 16 years, 5 to 10 years, 0 to 4 years